Michelle,
My radiation began in April of 2020 so to be honest with you I was more afraid of catching covid. I went to a radiology center that had very kind radiologists. You just have to tell yourself that this is the best thing to do and take it one day at a time. I did have some burns but because I was diligent about using cream the burns did not get really severe. The radiology department recommended a cream called MY GIRLS. You can get this on the internet, or you can use whatever your radiologist recommends.
Because this cancer is so rare it is difficult to find very much information on it. I have read though that there is good long-term survival. So that's a good thing.
You asked if I have had to do anything else since radiation. I see my oncologist every 3 months. She has ordered an imaging test every 3 months. I go from having a 3D mammogram then an Ultrasound and then MRI's. I don't know if this is normal or not. I have a very rare immune disease so maybe she is taking this into consideration.
This is an odd question for you, but I am curious if you have ever had breast papilloma's? I had surgery in both breasts 28 years ago and it makes me wonder if there is any connection to this unusual cancer.
I know how scarry this can be but there are so many brilliant doctors out there. I am sure you will be in good hands.
Let us know what you find out from your doctor.
Katrina