Hello @debduh11, Welcome to Connect. I can't even imagine how difficult it has been for you trying to manage the pain for 20+ years. @steeldove shared this article in another discussion about the challenges similar to what you have faced.

--- Neuropathic Pain: Navigating the Challenges of an Elusive Disease:
https://www.neurologyadvisor.com/topics/neuropathy/neuropathic-pain-navigating-the-challenges-of-an-elusive-disease/2/.
You might want to look through the discussions in the Neuropathy Support Group to see if there you can relate to - https://connect.mayoclinic.org/group/neuropathy/.

Have you heard about or looked into a pain rehabilitation center?