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Anyone take new drug Camzyos (mavacamten) for HCM?

Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 23 7:57am | Replies (770)
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@kelliw

Good morning! Yay that you have started! I am really hoping you will feel relief quickly! I did! It has been a life changer. I started March 30th. I have my life back! I am so happy you started sharing your journey with all of us. This group has been such a great support! Keep us posted! 🙂

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Replies to "Good morning! Yay that you have started! I am really hoping you will feel relief quickly!..."
newtosohcm | @newtosohcm | Aug 17, 2023

Thanks so much.

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katiekins | @katiekins | Feb 2 11:45am

That’s wonderful news. Kate

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katiekins | @katiekins | Feb 9 8:07am

Sadly I have had to stop as suffered severe side effects. Very upset…. Severe headaches, jaw ache and not going to the loo (urine) so very very disappointed! Back to the drawing board.

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