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Neuropathy and Blood Flow

Neuropathy | Last Active: Aug 22, 2023 | Replies (57)

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@debduh11

I suffer from length dependent peripheral neuropathy
in both feet and it is progressing upward halfway to both knees. I need help because this problem is getting worse and I am out of options.
The Before this occurred, I got an infection in both legs from the knees down on two separate occasions, and had to be hospitalized both times for a week at a time. I do not have any swelling nor do I have diabetes. I do have arthritis in parts of both feet including my toes. I have within the last year been diagnosed with plantar fasciitis in both feet also. This subsided quite a bit after PT. I take Cymbalta 2x a day, Percocet 10/325mg 4x a day, Vitamin B Complex, and Magnesium and Volterin cream daily on my sacral area and my feet. I also suffer from chronic pain from neck to the and including my sacral area.
(Years ago I had surgery for the removal of a Tarlov cyst located from L4 to S2, a laminectomy, a fat graft and a sacral plate implanted due to the fact that the cyst wore away my sacrum causing it to be paper thin). I have had 3 tens units surgical placed into my body in 3 separate areas which had to be removed during the first trial phase of each because all 3 caused staph infections where they were placed so they each had to be removed. My neurosurgeon retired and his replacement was not sure how to fix my spinal issues only that he could do a fusion which probably wouldn't help my problem. It seemed as though he was pushing the newest TENS The neurologist that I was referred to for my neuropathy said that he was sorry that the medical profession had failed me and there wasn't anything that he could do for me and good luck.
I have been going to pain management for 20 plus years and have had many pain injections, nerve blocks and epidurals. These procedures have never really helped with my pain, but I keep on trying different things.

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Replies to "I suffer from length dependent peripheral neuropathy in both feet and it is progressing upward halfway..."

Hello @debduh11, Welcome to Connect. I can't even imagine how difficult it has been for you trying to manage the pain for 20+ years. @steeldove shared this article in another discussion about the challenges similar to what you have faced.

--- Neuropathic Pain: Navigating the Challenges of an Elusive Disease:
https://www.neurologyadvisor.com/topics/neuropathy/neuropathic-pain-navigating-the-challenges-of-an-elusive-disease/2/.
You might want to look through the discussions in the Neuropathy Support Group to see if there you can relate to - https://connect.mayoclinic.org/group/neuropathy/.

Have you heard about or looked into a pain rehabilitation center?

Does the B Complex contain vitamin B6? Excess vitamin B6 can cause peripheral neuropathy and may be contributing to yours.