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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Oct 28 4:54pm | Replies (3050)

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@johnbishop

About 10 years ago when I had my doctor how they can tell if I have peripheral neuropathy, he said they could run some tests but they were expensive and may cause a little pain. I then asked him if the tests show I have nerve damage what can you do. When he said nothing I decided why have the tests. I've come to regret it a little since it's gone from the toes and bottoms of the feet up to below the knees. So now that I have had the ECG and MRIs that show nerve damage I'm waiting to see if the neurologist at Mayo will be able to tell me the specific type of neuropathy I have or if I need additional tests to make the determination. My doctor team at the Mayo Family Clinic thinks it's associated with pre-diabetes but I'm not buying that diagosis just because I've had it for a long time and do not have diabetes. I think it's related to my PMR which is mostly in remission. I have a friend with peripheral neuropathy that was helped by treatments through the Realief Neuropathy Center in St Louis Park, MN but they are really expensive. There is also a group of members of the MN Neuropathy Association that have had a lot of success using electrotherapy(?) with the Zopec DT-1200 device. I'm really hoping that there is some natural treatment that will reduce the numbness so I have been trying lots of different lotions and cremes with not much success so far. Another resource you can tap into looking for people with the same condition for advice or just to vent is the closed Facebook group Our Neuropathy Friends. Great group of people that are pretty active. Thanks for listening...praying that you all will find some relief.

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Replies to "About 10 years ago when I had my doctor how they can tell if I have..."

I am using a combo of eucaliptis (sp) and tree tea oil mixed with almond oil. seems to calm it down. Vicks vapor rub calms it. Also use on ankles and legs as they like to torture me also. When I can't get anything to calm it down, I get up and put my feet on my vibrator. It is a nice one, has a base of about 5 inches by 8 inches

I spent $3500 at Realief In Brooklyn Park, MN last summer. I have feeling in my thighs and legs now, and some i my feet. Yes. it is expensive for the treatment and maintenance, but I was falling 6 to 7 times a week on a regular basis and at 68 years old I felt there would come a time where I wouldn't bounce so well. The debilitation from breaking a hip, for example, would cost me a lot more than a lifetime of Realief. Giving it a try was certainly worth it for me. As the saying goes "I ain't well, but I sure am better."

Very happy for you crystalgal. Even a little less pain and other symptons are better than nothing. Good for you.

I have Peripheral Neuropathy which originally was diagnosed as idiopathic until a special blood test showed that I have a rare antibody FGFR3 . Which is the cause. I too have fibro and other autoimmune diseases like Hashimoto' thyroiditis. Osteoarthritis, pelvic floor dysfunction and I am a kidney cancer survivor.