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Male 65 year old farmer with thrombocythemia
Blood Cancers & Disorders | Last Active: Sep 5, 2023 | Replies (43)Comment receiving replies
Everyone is different but I went to Rochester MN, Mayo Clinic and after 2 years of 650 platelets and toxic reactions to drugs ( I was really sick!) Mayo Dr said they treat ET with only aspirin if your platelets are below 1,000. Mine have crept to 1,000 now (maybe, long story) and I can tolerate Jakifi only. I’m taking 20 mg 2x/day plus 81mg aspirin. If you’re not seeing a hematologist then please find one. Feeling good is not good enough if you have a high stroke potential. You’re lucky that your Dr is familiar bc many are not and people die from cardiac arrest or stroke or both. Good luck!
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That is the same message I got. No treatment except aspirin unless platelets are over a million. So that is what I did. They call us the "millionaire's club". Unfortunately mine rose to 2,000,00. So I was placed back on hydrea. There are exceptions to letting the platelets go to a million. Some people need treatment with cyto reducing medication such as hydrea or Jakifi so it is not a hard and fast rule but generally if you are younger that 65 and no other symptoms the experts MAY recommend aspirin only.