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Anyone here dealing with peripheral neuropathy?

Neuropathy | Last Active: Apr 25 1:31pm | Replies (2916)

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@bobsconnect

I have autonomic/peripheral neuropathy caused by GPA/Wegeners (vasculitis) for 6 yrs. I take gabapentin for the pain and cymbalta for the anxiety that goes along with it. I'm seeing a rheumotologist at Mayo Clinic in Scottsdale, AZ for these and he has also prescribed 50mcg fentanyl patches which has helped immensely. The combination does have side effects, mainly dizziness, which I deal with because of the pain relief benefit. The numdness does go along with neuropathy. That is the next most difficult obstacle. Trying to do anything, especially small is very frustrating. Buttons, zippers, coins, etc. are a nightmare at times. However, I have other health issues to deal with as well. More meds and doctors. It appears as though I will be dealing with this for the rest of my life. I turned 65 last Oct 2015.

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Replies to "I have autonomic/peripheral neuropathy caused by GPA/Wegeners (vasculitis) for 6 yrs. I take gabapentin for the..."

Yes

I also have autonomic/peripheral neuropathy caused by chemotherapy in 2006. It has progressively gotten worse during the last 3 years. So far lucky that I have the numbness and not the shooting pains. However, when you can't feel your feet, it's difficult to walk without falling frequently. I have PN in the first joint of my fingers, but can still do buttons, zippers, etc. If/When I can't do those things, I will be researching the adaptive devices that will allow me to be continue to be as independent as possible. Best of Luck .. ps I will be 69 this month. I also have other health issues and agree that we will be dealing with some level of impairment going forward