I have autonomic neuropathy as well as chemo induced peripheral neuropathy in my toes to my groin and also in the 1st digit of of my fingers. My endocrinologist surspect that I have Sjogren's syndrome in addition to Hashimotos thyroiditis. My worst problem is also numbness which has gotten much worse in the last couple of years which really affects my ability to anything that involves standing on my feete because of very poor balance. I have gotten some help with Laser IV treatments together with soft tissue massage and regular PT. I'm hoping to purchase a Rollator with a seat so that I can get outside and walk more. .. hoping it will at least strengthen my legs so that I can go further, stand in lines, etc.

Best of luck with your chemo. Hope it doesn't include taxol or taxotere as there seems to be a strong link between that family of chemo drugs and peripheral neuropathy

Hi John. Thanks for all the info. I agree that supplements do help many things. I have avoided gall bladder surgery by using milk thistle and danderlion drops every morning. I also keep my glucose level down using an array of supplements. And... Dr Wahl is my hero. She cured herself of MS. Wonderful lady! I am going to check that facebook group you mentioned. I also have neuropathy with numbness and shooting pains-- like needles sticking in my feet and toes. My doctor did recommend alpha lipoic acid for this and I have taken it for many years without noticing any difference. I have recently developed lymphedema in my legs and feet. They gave me leg pumps that massage your legs from the feet to the knees. I have been using these for one hour a day and have noticed recently that my feet are less numb and I get less shooting pains. I also have to use compression stockings. I wonder if this is helping my neuropathy? Guess it would be interesting for someone to do some research.

Hi @amkaloha, Dr. Wahls does have an amazing story to tell. I need to get back on track with my diet. I have done good for about the last year but have been getting a little careless lately with the junk and processed foods. I normally try to avoid processed foods and stay away from sugar but once in awhile one of those chocolate chip cookies jumps me out of nowhere and it's hard to just eat one. I do try to stay with her green smoothie routine at least 4 to 5 days a week. My doctor recommended compression socks for me several years ago but they seemed to make my feet feel worse. My right leg will sometimes swell up a little but most of that has gone away since I started taking the supplements last September. I do make sure I always sleep with ankle socks at night since I woke up one night a few years ago for my old mans trip the bathroom and noticed blood all over the floor. After spinning around in a circle a few times to see where it was coming from I noticed a tiny column spurting out of my ankle. Paramedics made me take an ambulance ride to the emergency room even though they had stopped the bleeding. So I now also make sure I keep my toenails trimmed since the doctor said I must have rubbed my feet together and nicked a blood vessel near the surface of the skin on my ankle. Funny part was when they tried to put a blanket over my head when they were taking me outside and I could see all my neighbors lights turned on to see what the commotion was. I told them please don't cover me up! - didn't want the neighbors to get the wrong idea.

I think the leg pumps probably are helping. I have one of the small hand held spot massager that makes the foot feel better but it's only been temporary. It would be interesting to try one of the leg pumps but the cheap ones probably aren't very good and I'm not sure about getting ones that are medical grade.

Hope you find some relief.

John

I guess I am lucky because I don't seem to have any side affects from Gabapentin and it seems to help a little to take it. Going to up the dosage from 1200 mg to 1500mgs. Or try something else. Maybe more vitamins. Good luck all. I feel your pain and will send a prayer up for all of you.

@martid Like you, my PN is in my feet. I have the same stuff going on as your hands, only in my feet. The outside skin in numb, while the muscles inside sometimes hurt. This makes walking scary. I was taking Gabapentin three times a day but it didn't seem to be doing any good. So with my PCP's okay, I dropped it to 300 mg twice a day. It made no difference. Please post any information that helps you, and good luck. @cognac

I have had peripheral neuropathy for 20 years and it is terrible. Sharp pains in toes and sides of feet. I take 3,600mg of gabapentin a day plus duloxetine (60mg) in the morning and amitriptyline (25mg) at night. I still have pain. Use CBD (500mg) cream at night. I also have Raynaud's. Have not seen a Rheumatologist. I am just hearing about statin drugs being a side effect for neuropathy. i have taken atorvastatin for a very long time. Can anyone give me more information about statin drugs and Raynaud's contributing to neuropathy?

Hello you beautiful people. The numbness is unbelievable. How can one have SEVERE sting/burn and numbness at the same time EVERYWHERE?? Nerve disease has to be the worst! Warm regards, Sunnyflower

I take just gabapentin, and for 9 years. Now, it's July 11, 2022.
My problem is mainly in my ankles and feet. Three doctors asked me if take gabapentin before I did, I tried pain killers, but they didn't work.

I got Neurapathy in my legs feet Started using rebuilder 300.
Works fantastic, just don't go over 4 So you don't overstimulate. That's where I am at right now.
Had to quit for a week. Start backup slowly and my water Bath 5 minutes in the morning. On my 4th day 96% Relieves pain it's supposed to rebuild What do you lost?
Google rebuilder 300.
For more info