← Return to Has anyone been diagnosed with POEMS syndrome?
DiscussionHas anyone been diagnosed with POEMS syndrome?
Blood Cancers & Disorders | Last Active: 14 hours ago | Replies (12)Comment receiving replies
Replies to "I thought I would check in. @tlth, how are you doing? Are you receiving any treatment..."
Thank you for asking @colleenyoung . My partner has been diagnosed with plasmacytoma.
He starts radiation in 9 days, 20 doses over a month, not at weekends. While they calculate that he's been put on a strong steroid (dexamethasone) and a chemo drug (lenalidomide/ revilimid.) Both have side effects which have affected him. Blood sugar spikes with the steroid.
Thank you for asking how I'm doing - I'm tired, but so relieved a treatment plan is in place. We are very fortunate the hospital he is in is only 20 miles away although I didn't expect my first few months of retirement to consist mainly of hospital visiting.
He is coping fairly well, and now the treatment is underway he is much more positive. He has been warned about increased pain in the short term and that this will take a few months to lessen. It's still a long road ahead.