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← Return to Always run down with MGUS
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Blood Cancers & Disorders | Last Active: May 29 10:06pm | Replies (54)
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hi I was diagnosed with MGUS a few years ago and I have had zero information on it All I got told was I need bloods done every 4 months to check levels of which were high They are usually around 8 and all I know is that if they go up to 10 I need to go for further treatment but for what ????
Replies to "hi I was diagnosed with MGUS a few years ago and I have had zero information..."
I’m with you, don’t get much from hematologist, just that she will do labs every 6 mos to follow my MGUS level.
That’s about all I know, right now I’m fine, and will return for labs in 6 mos.
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@debscullum62 Welcome to Mayo Clinic Connect. How did you find us?
Here is information about MGUS from the International Myeloma Foundation: https://www.myeloma.org/what-are-mgus-smm-mm
And what Mayo Clinic has to say: https://www.mayoclinic.org/diseases-conditions/mgus/symptoms-causes/syc-20352362
It's important to note that for many of us, we get a diagnosis of MGUS while labwork is being done for other reasons. Equally important, is the fact that for the vast majority of people the MGUS does not advance to SMM [smoldering multiple myeloma]. Living your life normally and fully, minimizing stress, eating healthy, exercising moderately all will go a long way. Monitoring your health is important to make sure there is not a progression.
I hope this helps you?
Ginger