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Cholangiocarcinoma Bile Duct Cancer: Want to share experiences?
Liver Cancer | Last Active: 4 days ago | Replies (26)Comment receiving replies
My tumor is inside my bile duct. My symptoms began with jaundice and nausea. I have a stent in place to keep the bile duct open. The nausea and jaundice have subsided, but the stent is only temporary- I have already had four stent procedures. I do not want to do chemo, even though the doctors will not do a resection surgery. I may skip to proton beam therapy only. Are you on chemo?
Replies to "My tumor is inside my bile duct. My symptoms began with jaundice and nausea. I have..."
@egoodies, I'd like to add my welcome along with @edie78t
I'm also tagging other members who have experience with bile duct cancer like @jalewallen74 @stanr71 @billdemarco @lovingwifeterry @timdale @tball3748 and more.
You may also be interested in these related discussions:
- Diagnosed with cholangiocarcinoma, can this be treated?
https://connect.mayoclinic.org/discussion/diagnosed-with-cholangiocarcinoma-can-this-be-treated/
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https://connect.mayoclinic.org/discussion/who-are-the-best-doctors-for-cholangiocarcinoma-at-the-mayo-clinic/
– Cholangiocarcinoma – Bile Duct Cancer – anyone else dealing with this? https://connect.mayoclinic.org/discussion/cholangiocarcinoma-bile-duct-cancer-anyone-else-dealing-with-this/
@egoodies, have you and your team decided on next steps and a treatment plan?
I have been on chemo for 2 years with this diagnosis. The targeted therapy that was found called Pemazyre has been the most effective. I find strength in my faith w/God and try keeping a good attitude. I have stents and due to a grandchild rough housing had to get an external bile duct drain that is now capped and they are waiting 5 weeks to be sure everything ok. I’ve gotten on FB and found hugely proactive cholangiocarcinoma groups I recommend you hop on.
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No. I am waiting for my radical nephrectomy, removal of the left kidney. And afterwards he said a year of immunotherapy and targeted therapy.