Connect
← Return to Cholangiocarcinoma Bile Duct Cancer: Want to share experiences?
Discussion
Cholangiocarcinoma Bile Duct Cancer: Want to share experiences?
Liver Cancer | Last Active: Feb 13 3:33pm | Replies (63)Comment receiving replies
My tumor is inside my bile duct. My symptoms began with jaundice and nausea. I have a stent in place to keep the bile duct open. The nausea and jaundice have subsided, but the stent is only temporary- I have already had four stent procedures. I do not want to do chemo, even though the doctors will not do a resection surgery. I may skip to proton beam therapy only. Are you on chemo?
Replies to "My tumor is inside my bile duct. My symptoms began with jaundice and nausea. I have..."
@egoodies, I'd like to add my welcome along with @edie78t
I'm also tagging other members who have experience with bile duct cancer like @jalewallen74 @stanr71 @billdemarco @lovingwifeterry @timdale @tball3748 and more.
You may also be interested in these related discussions:
- Diagnosed with cholangiocarcinoma, can this be treated?
https://connect.mayoclinic.org/discussion/diagnosed-with-cholangiocarcinoma-can-this-be-treated/
- Who are the best Doctors for Cholangiocarcinoma at the Mayo Clinic
https://connect.mayoclinic.org/discussion/who-are-the-best-doctors-for-cholangiocarcinoma-at-the-mayo-clinic/
– Cholangiocarcinoma – Bile Duct Cancer – anyone else dealing with this? https://connect.mayoclinic.org/discussion/cholangiocarcinoma-bile-duct-cancer-anyone-else-dealing-with-this/
@egoodies, have you and your team decided on next steps and a treatment plan?
I have been on chemo for 2 years with this diagnosis. The targeted therapy that was found called Pemazyre has been the most effective. I find strength in my faith w/God and try keeping a good attitude. I have stents and due to a grandchild rough housing had to get an external bile duct drain that is now capped and they are waiting 5 weeks to be sure everything ok. I’ve gotten on FB and found hugely proactive cholangiocarcinoma groups I recommend you hop on.
Just saw this ftom 2023 and curious what’s happening since then. I had liver resection Sept 2024 and hate taking chemo especially since no spread but docs say microcellular possibly but already had to quit pill from side effects Capecitabine and now to start Gemcitabine IV Tuesday
Connect
No. I am waiting for my radical nephrectomy, removal of the left kidney. And afterwards he said a year of immunotherapy and targeted therapy.