← Return to Cirrhosis of the Liver: What to expect when waiting for a transplant?

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@rosemarya

Hi, @missi. I want to welcome you to Connect where you can talk with others who are like you - with questions and experiences of their own. Myself, I am a transplant recipient, and I completely understand the fears and concerns that you are experiencing. Please be assured that your earlier denial is something that is quite common until symptoms begin to develop.

I am glad that you have already connected with @parrot53!
I see that you have asked about who/how to get referral - Do you have a Gastroenterologist or a liver doctor? Ask your PCP for a referral to one in your area.

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Replies to "Hi, @missi. I want to welcome you to Connect where you can talk with others who..."

H Rosemary, thank you so much for your kindness and compassion. The denial pieces are really big pill to swallow. I just keep thinking I should have done something or could have done something and now I'm in this mess. I think it'll take a long time to not be mad at myself if ever. I have seen a GI doctor who specializes in hepatic disorders. I have to say that it has been rather a cold and disconnected process. He conducted an in office density test and this was the first time that I had been given the information that I was suffering with cirrhosis and his delivery was awful. "Density level shows that you are in stage 4 a liver sclerosis, which is the final stage". He then shared with me that I needed to get in an MRI elastography. With the MRI I found out that I am in stage 4; however, I am compensated and not decompensated. Which I don't exactly still know what that means but I'm so researching. I have seen him three times and I still haven't been given any type of information in regards to what to expect, what's next, a diet plan, or even life expectancy. I have no idea how this evolves. I'm so sorry I'm rambling. Thank you so much for reaching out, I can't tell you how much I appreciate your time. 🌷 Jimi