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Cirrhosis of the Liver: What to expect when waiting for a transplant?
Transplants | Last Active: Aug 16, 2023 | Replies (104)Comment receiving replies
Hi, I too am feeling great discuss in myself. I would say that I am fairly intelligent but when I came to my diagnosis I went into denial and became really stupid. I don't understand why I didn't research my butt off like I do everything else. I think I believed my PCP when she said (10 years ago) "everybody has elevated liver enzymes once in awhile and even mild fatty liver because of the American diet" I'm so very mad at myself. Now I sit here with stage four liver cirrhosis, while I'm told my liver is functioning well which completely baffles me. I'm so sad and so confused. I was just with stage 4, 3 weeks ago. I have no idea what to expect. ={
Replies to "Hi, I too am feeling great discuss in myself. I would say that I am fairly..."
Hi, @missi. I want to welcome you to Connect where you can talk with others who are like you - with questions and experiences of their own. Myself, I am a transplant recipient, and I completely understand the fears and concerns that you are experiencing. Please be assured that your earlier denial is something that is quite common until symptoms begin to develop.
I am glad that you have already connected with @parrot53!
I see that you have asked about who/how to get referral - Do you have a Gastroenterologist or a liver doctor? Ask your PCP for a referral to one in your area.
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Hello,
I also am in limbo. I am currently on the transplant list at Mayo Jax but inactive at present. My liver function is quite good but I had a tumor removed a year ago. I am wondering if anyone else had their transplant when they were feeling fairly well and if life after transplant is better. I guess what I mean is, is your overall quality of life better. Do you feel well? Thank you for being here and your willingness to share.