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Joint Pain after Organ Transplant

Transplants | Last Active: Oct 9 8:39am | Replies (85)

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@rosemarya

@grateful 76,
I also experienced joint pain and body aches when I was tapered off prednisone. I needed a slower taper, and that helped ease the discomfort. Each of us reacts differently.

Are your doses of prednisone being reduced from the high dose that you were taking immediately after transplant? Have you mentioned the joint pain to your transplant team?

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Replies to "@grateful 76, I also experienced joint pain and body aches when I was tapered off prednisone...."

Thank you @rosemary.
I’m 7 months post and prednisone was tapered almost 5 months ago. I had no issues until June. Mostly arms, shoulders, fingers pains and sometimes very severe. My transplant team tested magnesium level but it was normal. I’m not sure why this is happening now. Currently I’m taking Tacrolimus and Fluconozole medication. Is it possible to be a side effect from these medications? Any suggestions are appreciated. I wish you a beautiful day! Thank you!

Exact same thing happened to me after weaning off prednisone (my post is in this thread). I’m now back on 5mg prednisone a day as of 8/8/23 for a month, and then I will taper off and see what happens. How many months post transplant are you? Are you still tapering off or are you finished with prednisone? What are your results overall or are you still in the process? Sorry for so many questions but am so eager to hear/fix/spread the news about joint pain post transplant. IT’S REAL! Thanks so much!