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Male 65 year old farmer with thrombocythemia
Blood Cancers & Disorders | Last Active: Sep 5, 2023 | Replies (43)Comment receiving replies
Hello nohrt4me,
You stated that your doctor put you on a low dose of hydroxyurea. My Wife's doctor said they don't make anything under 500 mg but said that we could cut it in half. When we expressed the written orders on the label requiring that contact with countertops required triple rinsing before additional use, the doctor advised that my Wife take one pill every other day. What was your low dose?
Thanks to you.
Keith
Replies to "Hello nohrt4me, You stated that your doctor put you on a low dose of hydroxyurea. My..."
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Hi, Keith, my dose was 500 mg per day after platelets showed a steady upward trend and were at 800.
It was upped to an additional 3 caps per week after the first year to get platelets to 400s. Levels had stalled in 600s. My onco still calls my dose.
From what I understand, patients who start on lower doses better than those who are given 1,000 mg per day or more.
I actually felt better, more energy when I first started HU. That has kind of dwindled, but I don't feel sick.
Fwiw, I get those little paper pill (souffle) cups from Amazon, dump the caps in those from the bottle, pop the pills in my mouth without touching them, then throw away the pill cup. Prevents handling.