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Polycythemia Vera: Just been diagnosed
Blood Cancers & Disorders | Last Active: 2 days ago | Replies (400)Comment receiving replies
Hi Lori, I'm waiting to hear the results of a "financial aid" application for Besremi. I guess I'll go back on it staying at a low dose for as long a duration as possible, if the cost becomes reasonable. I think the oncologist suggested 100 mcg twice a month, watching blood counts monthly. (I'd been checked every two weeks up to this point.)
Glad your liver is well. My qigong teacher says "smile to your liver and it will smile back at you."
Replies to "Hi Lori, I'm waiting to hear the results of a "financial aid" application for Besremi. I..."
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Good morning, @treeore. I hope you’re able to catch a break with the cost of Besremi. When the insurance approval went through for one of my meds a few years back, the drug came from a specialty pharmacy. The person assigned to my case from the pharmacy mentioned that there were grants depending on income level. I didn’t meet the criteria but it was a substantial and appreciated break for anyone that was eleible. I know some of our specialty meds can come with a high price tag. So best wishes on that!
The good news, from what I’m reading, is that your leash is a little longer now from blood work? That’s a positive sign. Means your doctor is feeling comfortable enough with your blood numbers to give you a little more time between appts. When that started happening for me, I was a little nervous in the beginning but then began to realize it was a very good sign. ☺️
Is the 100 mcg dose you’ll take monthly less than what you were receiving previously? Is this more of a maintenance dosage?
I meant to ask, how did that SUP paddle board adventure/experience work turn out this summer??