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DiscussionPolycythemia Vera: Just been diagnosed
Blood Cancers & Disorders | Last Active: Aug 26 12:21pm | Replies (395)Comment receiving replies
Replies to "Hi Lori, I'm waiting to hear the results of a "financial aid" application for Besremi. I..."
Good morning, @treeore. I hope you’re able to catch a break with the cost of Besremi. When the insurance approval went through for one of my meds a few years back, the drug came from a specialty pharmacy. The person assigned to my case from the pharmacy mentioned that there were grants depending on income level. I didn’t meet the criteria but it was a substantial and appreciated break for anyone that was eleible. I know some of our specialty meds can come with a high price tag. So best wishes on that!
The good news, from what I’m reading, is that your leash is a little longer now from blood work? That’s a positive sign. Means your doctor is feeling comfortable enough with your blood numbers to give you a little more time between appts. When that started happening for me, I was a little nervous in the beginning but then began to realize it was a very good sign. ☺️
Is the 100 mcg dose you’ll take monthly less than what you were receiving previously? Is this more of a maintenance dosage?
I meant to ask, how did that SUP paddle board adventure/experience work turn out this summer??