← Return to Male 65 year old farmer with thrombocythemia

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@splashgirl1961

I have diagnosis found during normal blood screen prior to procedure. Seen two hematologist both specialist in cancer. First diagnosed in 2020, on daily low dose asprin. Fatigue, extreme itching and skin rashes, no definitive diagnosis on skin. After over 7 ct, mri, finally July got PET, no malignancy detected. Suggest phlebotomy to reduce RBC COUNT. Went in thinking I was getting a pint removed and they take one tube. Now say my counts 2 points shy of required phlebotomy. No biopsy, only one JAK test negative but know there are Faldo positive! I have lost 70 lbs since January 2020, sweating profusely prior to the diagnosis now cold, pain in mid back, never had pain here! No meds suggested however I’m not sure I would consider that at this point! Now they say in person risk of developing cancer but want to claim it from COPD and I’m only stage 2 after 7 years and not a big issue! I can’t get a regular hematologist to see my here in Dallas and I’m sick of western medicine gaslighting me, milking Medicare and not following their own suggested plan! I’m seeing naturopath doc and got better results with his plan than any western medicine! My greatest fear is stroke, runs in family and at 61, live alone and just trying to make better choices with nutrition, lifestyle and thinking of donating blood this month. Heal thyself is my current thought process. I hope that time and circumstances don’t cause further harm but I’m frustrated and just want to live fully! Hope you all are well and look forward to following the thread!

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Replies to "I have diagnosis found during normal blood screen prior to procedure. Seen two hematologist both specialist..."

"I’m seeing naturopath doc and got better results with his plan than any western medicine!"

What better results did you get?

I am very skeptical about alternative practitioners. Medicare/insurance doesn't cover their treatment, and they can get very expensive.

I tried CBD oil for sleep and anxiety because many fellow patients were touting it. I researched carefully, paid $50 for 1 oz from a legit company, and it caused nothing but extreme heartburn. Come to find out, the "patients" pushing CBD were fake patients selling alternative "cures."

I'm on a fixed income, and I can't afford to flush money away on quack cures.

I hope you proceed with caution.

Hi @splashgirl, I’m not sure if you’re aware of this or not but if you have a blood cancer such as ET you are not able to donate blood to be used for distribution. A blood center is able to do the phlebotomy if you have a prescription but the blood isn’t able to be used.