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Polycythemia Vera: Just been diagnosed

Blood Cancers & Disorders | Last Active: Aug 26 12:21pm | Replies (395)

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@loribmt

Hi @treeore! Thanks for the update and I’m glad to see your liver enzymes have returned to normal after being off the Besremi. That wasn’t one of my drugs, but through my treatments for AML, my liver was what took the hits too. Amazingly, it has regenerated and numbers are keeping my doctor happy. ☺️
Wow, that drug has a hefty monthly price tag. I really don’t know much about medicare…I’m on it but there was never a question about paying for my drugs. I hope you’re able to have that straightened out with the insurance company so you can get what you need. Thinking back, I do remember one drug I was on initially where I had to speak with my insurance case manager to get approval. It was $20,000 a month and she really went to bat for me. I was able to get the drug though there was a co-pay.
How do they give you something mistakenly 6 times?? LOL. It’s a relief the cancer center is waving the charges, as they should! 😳
So, what’s next for you then? Will you be taking hydroxyurea now?

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Replies to "Hi @treeore! Thanks for the update and I’m glad to see your liver enzymes have returned..."

Hi Lori, I'm waiting to hear the results of a "financial aid" application for Besremi. I guess I'll go back on it staying at a low dose for as long a duration as possible, if the cost becomes reasonable. I think the oncologist suggested 100 mcg twice a month, watching blood counts monthly. (I'd been checked every two weeks up to this point.)
Glad your liver is well. My qigong teacher says "smile to your liver and it will smile back at you."