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My Wife is about to begin Besremi as her Hematologist just admitted that it is a frontline use drug after a year of harassment for our refusal to use Hydroxyurea.
If anyone out there who has used Besremi could please inform me of how their treatment, side effects and results are, I would greatly appreciate the information. Thanks to all.
Keith
Replies to "My Wife is about to begin Besremi as her Hematologist just admitted that it is a..."
@akeytoo aloha Keith! I just started on Besremi a couple weeks ago I give myself my own injections, but before that I was on hydroxyurea for 33 years I am glad to be off of that for now and I’m not having any symptoms from the besRemi yet my dose is only 100 µg right now and I give it to myself every two weeks. My doctor wants me to stay on the hydroxyurea five days a week until I can transition off pending blood test results. The pharmacy that sends me the drug calls me every two weeks to check in to make sure I’m not suicidal or having weird side effects cause there’s so many this is helpful. It’s keeping me in check on my symptoms, which I haven’t noticed any yet. Hope all goes well with your wife and things get under control. Let me know if she starts to have any symptoms too. Take good care Leene
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Hi Keith,
I moved your message to this existing discussion:
- BESREMi anyone? https://connect.mayoclinic.org/discussion/besremi-anyone/
I did this so you can see @loribmt's helpful post with several references and so you can connect with members like @upnorth94 @sanjayd @treeore who are on or considered treatment for polycythemia vera with BESREMi (ropeginterferon-alfa-2b-njft).
When will your wife begin treatment with Besremi?