Learn About NETs and monthly meetings

@magnum2

Yes, the recorded version should be available soon.
Here is the link to recordings of previous meetings that you might find interesting. If you don't see the August meeting listed yet, just check back for it.

Missed it so be watching on YouTube 🙏

Hello All:

The monthly Mayo NETs Support Group will be meeting on Thursday, September 7, from 5:30 to 7 p.m. EST, via Zoom. You need to register in advance in order to receive the Zoom link. Here is the link to register:
https://mc-meet.zoom.us/meeting/register/tJwkf-ivpz4jG9aqLYrH43Nl-mHPpWp-RBuf

The meeting will be hosted by a Mayo Clinic Social Worker. The special speaker this month will be Dr. Jason Starr, a Mayo Clinic oncologist and Hematologist at Mayo Clinic, Jacksonville, Florida. After the meeting you will have the opportunity to speak with other NETs patients and share experiences and ask questions of each other. For Questions or Concerns please call 904-953-7266.

Please join us and remember to register in advance so that you receive the Zoom link!

I would especially like to invite some of our newer members such as @carm1011 @tinerobison @pete1962 @c2pricorn66 @ricki8 @willam @nana120 @lindaamos @bellom @aseb08

Carcinoid Cancer Foundation is having a "Lunch with the Experts" tomorrow, July 14. This is another opportunity to learn:

What: Luncheon with the Experts presented by the Carcinoid Cancer Foundation
Who: Charles W. Nutting, DO, FSIR, is the featured guest

When: Thursday, September 14, 2023 from 12 noon to 1 pm, Eastern Time

Where: CCF’s Facebook Page, https://www.facebook.com/Carcinoid/. Just come to the page at noon and the program will begin. There is no need to register nor is there a special link.

For anyone not on Facebook, each of the presentations in the series is available on CCF’s YouTube channel, https://www.youtube.com/user/CarcinoidNETs. To receive notifications of all new videos on our YouTube channel, CLICK LIKE, SUBSCRIBE and HIT THE BELL to receive notifications each time a new video is uploaded.

Charles W. Nutting, DO, FSIR, is an interventional radiologist at Endovascular Consultants of Colorado in Lone Tree. He previously practiced at Resurrection Medical Center in Chicago, Phoenix Children’s Hospital, St. Joseph’s Hospital and Medical Center, and served as the Chief of Interventional Radiology at Good Samaritan Regional Medical Center. He specializes in performing minimally invasive image-guided cancer procedures.

Here is a link to a LANCETS podcast that explains, "WHAT TO KNOW ABOUT GRADE 3 POORLY DIFFERENTIATED NEUROENDOCRINE CARCINOMA (NEC) "

For those of you who have this diagnosis, it might provide some insight.

I have a well differentiated metastatic liver tumor removed two years ago. I was getting lanreotide shots monthly but they caused severe diarrhea and tiredness so I got off of them. I was told the drug treats the symptoms but doesn’t shrink the tumor. It’s so confusing to me. Is the drug meant to keep me alive longer or not? I always wonder nightly if I’m going to wake up in the morning or how much longer I have. 🤷‍♀️

Information about caring for NET patient

Hello All:

The monthly Mayo NETs Support Group will be meeting on Thursday, October 5, from 5:30 to 7 p.m. EST, via Zoom. You need to register in advance in order to receive the Zoom link. Here is the link to register:

The meeting will be hosted by a Mayo Clinic Social Worker. The guest speaker this month will be Renee Foster, MSW, LCSW, a Palliative Care Social Worker from Mayo Clinic, Jacksonville, Florida.

After the meeting you will have the opportunity to speak with other NETs patients and share experiences and ask questions of each other. For Questions or Concerns please call 904-953-7266. Remember this online support group is open to all NETs patients whether you are a Mayo Clinic patient or going to another hospital system.

Please join us and remember to register in advance so that you receive the Zoom link!

While all members of the NET Support Group on Mayo Connect are invited to this meeting, I would especially like to invite some of the newer members such as @gesmone1, @sandy23, @snowflake0731, @joy5877 and @lully2505.

Hi @hope7, I can help connect you with other NET caregivers and patients. What type of neuroendocrine tumor does the person you're caring for have? Is this a recent diagnosis?

Good afternoon! I thought I would share an exciting news. The 3 scientists who discovered quantum dots and made possible sharp colors of our electronics and MEDICAL IMAGING ( see Dotatate) have been awarded the Nobel prize in Chemistry this year!