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@kayelle

Thanks very much for sharing your story with me I appreciate it? I feel like a babe in the woods though am learning a lot. My brother had As very young, with bad radiographic spinal damage. He is not 60 and completely free of damage, though is cautious with his diet and does Yoga every day. I am taking on board all the info I can. I hope I DO know what is right for me as I go, like you said. So one step at a time. I hope you can get back strong and fight off some of the infections a o k. Your present specialist sounds the right attitude.

My biggest fears are Liver damage, Kidney Damage and most is the permanently suppressed immune system. However can I put up with this 'restricted' lifestyle and unpredictable pain.?

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Replies to "Thanks very much for sharing your story with me I appreciate it? I feel like a..."

OK. At this stage I know I am lucky to have a 'quality of life' decision even to make. I am concerned about liver and kidney damage, and also very much immune system complications. Thanks for sharing what you know. My brother (i have only just learned) had As at 23 years, very advanced on X-ray. He is 60 now and stopped all meds after stomach problems(only tried for 9 months). (MRI's and Biologicals were not available). His X-rays are now completely clear. He has found some things in his diet he avoids and daily does Yoga. I hope you are right in that I will know what is right for me as you seem to. You mention 'when you could' regarding work. I am very concerned for how reliable I can be with this unpredictable pain and varying fatigue and concentration levels.