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I am newly Diagnosed with MGUS.

Blood Cancers & Disorders | Last Active: Feb 6 5:38am | Replies (61)

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@mascot

I am amazed at your reply after all the suffering you and your late husband went thru! Stay positive and enjoy your life as best. You are a role model for taking things as they come and dealing with them Asbest as possible.
I live in Germany so habe changed my diet to plant based with fish, curcuminoids and try living healthier. I wonder what else Urvi does/recommends/ controls in the study and would be really interested to hear about the tests and recommendations!
I am 63 and have had MGUS which suddenly jumped to SMM due to a load of stress?!? In the past 2 years.
Trying to keep myself healthy and my head sane!
Regards
Mascot

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Replies to "I am amazed at your reply after all the suffering you and your late husband went..."

Hey Mascot.

I jokingly say that I live by my blood type, "B+."

One thing I know for sure is that stress is a killer and I've been the poster child for it. Especially during Steve's decline. Wish I was in the position to walk away from work, but have a little longer - less than a year and maybe only 5 months.

So, Urvi's hypothesis is that a whole food, plant-based diet (WFPBD) will serve to reduce inflammation as expected from the curcuminoids. My randomization was just to the WFPBD group, others to just the curcuminoids supplements group and others to a supplement or placebo group with WFPBD.

She is also researching on the level of intestinal butyrates as they relate to the microbiome of our gut. Butyrate is thought to have various health benefits, such as reducing inflammation and potentially anti-cancer effects in the colon.

Tests are mostly those you are already familiar with due to MGUS - free light chains, M-spike, Immunoglobulins... She also does evaluate the inflammatory labs (C-reactive protein, ESR), lipids, A1C, Beta-2, not just IgG, A, and M, but also IgD and E. The evaluation of the stool is to be determined, but it is collected.

Did you move to Germany or is that your Nation of Origin? I have recently met someone that moved there due to the politics of America and am also friends with someone that once worked there. Wondering if they address the MGUS/SMM any different that the States?

Shared files

STUDY CALENDAR FOR NUTRIVENTION-3_Informed Consent (STUDY-CALENDAR-FOR-NUTRIVENTION-3_Informed-Consent.pdf)