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Male 65 year old farmer with thrombocythemia

Blood Cancers & Disorders | Last Active: Sep 5, 2023 | Replies (43)
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@docoltun

I have had ET for over 20 years, diagnosed in my 40s, take anagrelide from the beginning and the platelet count is under control. I do see a hematologist. I never had symptoms, when I ask if I'm 'cured' my doctor says I can stop taking the medication and see what happens though that was a risk of stroke or other complications. Keep riding that tractor!

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Replies to "I have had ET for over 20 years, diagnosed in my 40s, take anagrelide from the..."
akeytoo | @akeytoo | Aug 13, 2023

Hello docolton,
My Wife supposedly has PV although many recognize that the WHO is severely lacking in their diagnostic criterion. Upon achieving a normal Hematocrit through phlebotomy alone, my Wife's platelets and white blood cells continued to grow in count. When I sought platelet apheresis and/or leukapheresis I was told I was on my own. I did recognize anagrelide as a potential benefit for platelet numbers. Would you please elaborate on your use, it's effects and outcome.
Thank you/
Keith

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