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Anyone Else with Waldenstrom's and COPD?

Blood Cancers & Disorders | Last Active: Jan 6 12:52pm | Replies (13)
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@badnewsforme

Mike, I made the assumption you were on Medicare like I am. All treatments I received at Mayo were covered by Medicare but that doesn’t do you any good if you’re not.
I’m not positive but the VA does allow outside treatment if they don’t provide the service or they are overbooked. I would certainly look into it. I believe VA has patient advocates that might help you navigate the system. You are looking for a Waldenstrom specialist not just a medical oncologist.
Best of luck. Never give up keep on fighting.

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Replies to "Mike, I made the assumption you were on Medicare like I am. All treatments I received..."
mike02041950 | @mike02041950 | Aug 12, 2023

Thanks for the input. I do have Medicare along with the Aetna Direct I signed up for after my retirement from the federal government. Pretty good coverage. Neither my wife nor I have had a medical bill since my retirement in 2017.

I think I will contact the PA at my local VA to inquire further about VA footing the bill. While my VA oncologist seems to know something about Waldenstrom's, she is certainly not a WM expert or a hematologist/pulmo doc. A case might be made here.

As a former Marine, I will never give in and never, ever give up. Thanks.

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