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Has anyone else with IDH-mutant diffuse astrocytoma, grade 2?

Brain Tumor | Last Active: Mar 18 9:11am | Replies (37)
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@trishaitheisen

I am not sure if this would be a possibility for you, I have the same cancer. I completed 34 days of proton beam radiation at Mayo in Rochester and now I am taking Tibsovo instead of Chemotherapy (I did not have surgery). I have minimal side effects and the tumor has stopped growing. The drug is not FDA approved however works much better (as far as side effects go) than chemo. I am not sure if this right for you, but it seems like it might be something you can check into or ask your Doctor. Take care.

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Replies to "I am not sure if this would be a possibility for you, I have the same..."
Colleen Young, Connect Director | @colleenyoung | Aug 23, 2023

@trishaitheisen, great news that the tumor has stopped growing. When did you complete proton beam radiation? Is Tibsovo (ivosidenib tablets) being used as a maintenance therapy?

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