Anyone dealt with degenerative disk disease with PV diagnosis?

No I haven’t had PV. I started in 2016 with ET JAK 2 and was controlled with Hydroxyrea until May 2022 and then progressed to ACML JAK 2

Interesting about degenerative disc disease and pv. I have lumbar degenerative disc disease confirmed on X-ray, but no one has suggested pv as a cause. I am 78 and was diagnosed with pv two years ago. Just started jakafi, but I think my back pain is age related. I know the md’s are not worried, just me. Stretching helps. JJD

Interesting to read this because today I saw my doctor regarding back pain.

My back pain goes back years and predates my pv diagnosis. I’m treating it as unrelated. Good luck with your treatment. JJD

Same here- comes with being tall! Lol!

My husband has had degenerative disc disease for years and this year diagnosed with MDS another blood cancer. So this is interesting I have read before where back pain can be a precursor yet no way doctors can check everyone with back pain for certain cancers.

I too have degenerative disc disease, was diagnosed in my mid-30s, lower back to begin but damaged my cervical area in car accident which re-supported the diagnosis. Have had one shoulder surgery which helped but now when they x-ray they just say, Man! Your spine is a mess, lots of arthritis in it too. I do not know if this is related to PV but who knows...something with the bone for sure...Others have osteoporosis as well so maybe its a good discussion to have with a doctor. thank you

I was diagnosed with degenerative disc disease with arthritis, spinal spondylosis, some kind of a twist in my spine and some other spinal problems with long medical names and have the remains of a lumbar herniated disc from about age 30 which now is called a bulging disc. I’m in a lot of lower back pain pain and am allotted 2 - 7.5 hydrocodone with Tylenol a day. The doctor took an X-ray and I was told the above along with the comment: man, your spine is really messed up. I’m a 73 year old woman. The doctor also ordered a MRI but when I got to the hospital and I told them I had a pacemaker in addition to my right knee replacement, they wouldn’t do the MRI. I live near Key West and apparently there are no hospitals in the Florida Keys that have a MRI machine for people with a pacemaker. I have to drive over 110 miles to get to the mainland of Florida and another 30 or 40 to get to a hospital equipped with the right MRI machine so I’ve been putting that off. Other than being a great swimmer, my exercise was work related. I owned and operated a tree nursery myself which is strenuous. The last big hurricane retired me and the nursery so I haven’t really exercised since 2017 except for occasional swimming.

I have just been given cardiac clearance for light exercise after being diagnosed with Atrial Fibrillation, Atrial Flutter, Coronary Heart Disease, Tachycardia and Bradycardia. My history shows 2 Myocardial Infarcts although I didn’t feel anything. Medical care is limited down here (remember that if you think the Keys is a great place to retire) and I don’t really know what to do. I was hoping for a stem cell transplant for the damaged discs but just found out that’s not FDA approved. I don’t want spinal fusion after reading your letters. Any suggestions?

Maybe there is a connection between Blood Diseases and back pain, ? I was diagnosed with PV in Jan 2020 but refused to take Hydroxyrea for 2.5 years. It wasn't until my PLT count went over 2,057 in July 2022 that I started with 500 mg a day. Now it's gone down into the 800 range, twice what is considered "normal". But...about 9 months ago I notice my back is starting to disintegrate, leaning to the left, so much so my trousers are now almost 1 inch longer on the left. As to pain, I don't have much but I attribute that to the fact I do floor exercises 6 days a week. I also drink a smoothie with about 1 oz of fresh ginger every day and take many other holistic supplements, thus for being 75 with PV I am doing rather well just looking somewhat deformed.