← Return to Trouble eating with HCM

Discussion

Trouble eating with HCM

Hypertrophic Cardiomyopathy (HCM) | Last Active: Nov 10, 2023 | Replies (38)

Comment receiving replies
@whidbey

I have been on Camzyos for three weeks now and kind of wish I had just stayed on the same medical intervention you are currently on. (Disopyramide and Metoprolol) It is such a hassle to have all the ECHOs , submit all the paperwork, and not feel any different! If I improve drastically, I will let you know.

Jump to this post


Replies to "I have been on Camzyos for three weeks now and kind of wish I had just..."

An update to this post: I have been on Camzyos two and a half months now and actually have some improvement in my stamina and ability to exercise. Yesterday I started 10 mg of Camzyos to see if I will experience even more improvement.

At about 6 weeks, I began having missed heartbeats and possible tachacardia and felt unstable. ( I have a handheld ekg machine which allows me to send my ekg's to my cardiologist) After consulting with my Cardiologist, he increased my Metoprolol which i take for my other heart issue: mitral valve regurgitation, and my heart stabilized. I write this for anyone who takes two drugs for heart issues and isn't feeling well.