Hi @relientkitten
You're right. New members can only post links after they have been an active member (3 days or 10 posts). We do this to protect the community from unwanted spammers. However, I reviewed the link you were attempting to post and it is very useful to this discussion. Thank you for finding it.
Thanks @colleenyoung - you have helped me with my daily goal of learn at least one new thing. Not sure if I had learned that one before though...if not, sorry!
I went through the PRC program in Rochester nearly a little under two years ago and can say, without hesitation, it changed my life!! I had been dealing with Central Sensitization Syndrome, and a vast array of debilitating symptoms for many years without the proper diagnosis. Before I got sick, I was active and proud of my career. I hadn't been able to do much of anything, let alone work, for about two years prior to attending the PRC. After the program, I was able to go back to work and do all of the things I previously loved - hiking, yoga, camping, traveling, etc!!! The PRC will help you learn how to manage your symptoms and live your life to its fullest potential. I always say to people...I am not who I was before chronic pain - I am even better! I credit all of that to PRC (and so do my family and friends who saw me go through everything). I'm happy to answer any questions you have about the program but my one piece of advice to you is this - it might seem strange at first. It might not "feel" like it's going to work but just trust it. It can work if you follow the plan. These are some of the world's most brilliant doctors and therapists who have researched chronic pain and understand what actually works. I (and many of my cohorts that I went through the program with) are living testaments to its success rates. Wishing you the very best of luck on this life-changing journey you're about to start on. Congratulations on getting the proper diagnosis, finding the program and taking the steps to take back control of this horrible monster (CSS/Chronic Pain) that ruins so many lives.
Hi. Thank you so much for telling your story. I posted I believe in this group already, but really wanted to tell you my story to see if you think Mayo could help me. You have finally given me a ray of hope. My name is Chris and I've had Chronic Fatigue, Chronic Migraine, and extreme Multiple Chemical Sensitivity for 28 years. Life is very difficult with this illness. I see that others have gone to the Pain Clinic and it has helped them, with this group of illnesses under Central Sensitization Syndrome. I did not realize that what I had was actually Chronic Pain and have been trying to treat the symptoms of chronic migraine, chronic fatigue, and chemical sensitivity:
migraine, confusion, brain fog, etc. What is the process for going to Mayo for this group of illnesses? Has anyone with Chronic Fatigue or Multiple Chemical Sensitivity and Chronic Migraine gone through the pain clinic for this diagnosis? My migraines have worsened recently and they are daily. I've been in bed basically for the past 4.5 months and thinking of going to Mayo. I only have Medicare and am on Social Security disability. Thank you! Chris
I was told that I had bilateral carpal tunnel, TMJ & thought the nerve damage spread to my "good" leg. I have issues with sounds, odors, touch nausea. I'm relieved that it's one big problem, instead of a bunch of individual problems.
Yes I was diagnosed with this a number of years ago. It’s been a long process to even begin to try to manage it because I’ve needed major brain and spinal surgery within a year of each other.
My nervous system operates on high with highly sensitive damaged nerves contributing to an already battered body. It’s been incredibly important and helpful for me to learn and regularly practise meditation. I take time out several times a day to meditate and try to include mindfulness in as many things as possible.
For me management has been about working with it as opposed to trying to change it which can be extraordinarily difficult. As humans beings when we experience pain we want to stop it. Whilst wanting to rid ones self of pain is normal it’s so ideal for those suffering chronic pain as it’s often an u realistic goal. Coming to terms with that and making peace with the idea that chronic pain will most likely be part of my life indefinately, immediately set a different attitude in my mind and I began to work with it as opposed to it.
Yes I was diagnosed with this a number of years ago. It’s been a long process to even begin to try to manage it because I’ve needed major brain and spinal surgery within a year of each other.
My nervous system operates on high with highly sensitive damaged nerves contributing to an already battered body. It’s been incredibly important and helpful for me to learn and regularly practise meditation. I take time out several times a day to meditate and try to include mindfulness in as many things as possible.
For me management has been about working with it as opposed to trying to change it which can be extraordinarily difficult. As humans beings when we experience pain we want to stop it. Whilst wanting to rid ones self of pain is normal it’s so ideal for those suffering chronic pain as it’s often an u realistic goal. Coming to terms with that and making peace with the idea that chronic pain will most likely be part of my life indefinately, immediately set a different attitude in my mind and I began to work with it as opposed to it.
That’s an astounding achievement, Sally, and one to which many of us pain people can only aspire. I’m light years from that degree of coping and acceptance. Congratulations on your powerful transformation.
Yes, I'm a 33 year old male and was diagnosed July 2018 at Mayo in Rochester but I can think back 8 years ago when my first symptoms began. The last year was a wreck but since diagnosis I'm learning to cope with it. Stay strong my friends!
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Thanks @colleenyoung - you have helped me with my daily goal of learn at least one new thing. Not sure if I had learned that one before though...if not, sorry!
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2 Reactionsthanks for stepping in.
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1 ReactionYes I have 1 year ago!
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1 ReactionHi. Thank you so much for telling your story. I posted I believe in this group already, but really wanted to tell you my story to see if you think Mayo could help me. You have finally given me a ray of hope. My name is Chris and I've had Chronic Fatigue, Chronic Migraine, and extreme Multiple Chemical Sensitivity for 28 years. Life is very difficult with this illness. I see that others have gone to the Pain Clinic and it has helped them, with this group of illnesses under Central Sensitization Syndrome. I did not realize that what I had was actually Chronic Pain and have been trying to treat the symptoms of chronic migraine, chronic fatigue, and chemical sensitivity:
migraine, confusion, brain fog, etc. What is the process for going to Mayo for this group of illnesses? Has anyone with Chronic Fatigue or Multiple Chemical Sensitivity and Chronic Migraine gone through the pain clinic for this diagnosis? My migraines have worsened recently and they are daily. I've been in bed basically for the past 4.5 months and thinking of going to Mayo. I only have Medicare and am on Social Security disability. Thank you! Chris
What is CRPS
Does Mayo offer a one day session ? They only told us about the 15 day session. 3 weeks actually.
Yes I was diagnosed with this a number of years ago. It’s been a long process to even begin to try to manage it because I’ve needed major brain and spinal surgery within a year of each other.
My nervous system operates on high with highly sensitive damaged nerves contributing to an already battered body. It’s been incredibly important and helpful for me to learn and regularly practise meditation. I take time out several times a day to meditate and try to include mindfulness in as many things as possible.
For me management has been about working with it as opposed to trying to change it which can be extraordinarily difficult. As humans beings when we experience pain we want to stop it. Whilst wanting to rid ones self of pain is normal it’s so ideal for those suffering chronic pain as it’s often an u realistic goal. Coming to terms with that and making peace with the idea that chronic pain will most likely be part of my life indefinately, immediately set a different attitude in my mind and I began to work with it as opposed to it.
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1 ReactionThat’s an astounding achievement, Sally, and one to which many of us pain people can only aspire. I’m light years from that degree of coping and acceptance. Congratulations on your powerful transformation.
Yes, I'm a 33 year old male and was diagnosed July 2018 at Mayo in Rochester but I can think back 8 years ago when my first symptoms began. The last year was a wreck but since diagnosis I'm learning to cope with it. Stay strong my friends!
Even a week would be nice. I don't know if I can take 3 weeks off of work