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Anyone Else with Waldenstrom's and COPD?

Blood Cancers & Disorders | Last Active: Jan 6 12:52pm | Replies (13)
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@badnewsforme

I have both and each problem can have similar side effects. I’m not a Dr this is my own opinion. If you have COPD i would recommend getting a CPAP machine and start using it. If you are suffering from sleep deprivation it plays hell on your health. Just as important (again my opinion) find a hematologist for a treatment work up. I’m a vet but choose to treat issues like Waldenstrom outside the VA (again just my choice).
Best of luck going forward.

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Replies to "I have both and each problem can have similar side effects. I’m not a Dr this..."
mike02041950 | @mike02041950 | Aug 10, 2023

Thanks for taking time to reply to my post badnewsforme. I agree that VA may not be up to speed on on something serious. It really is luck of the draw for VA providers and I doubt VA is focused on something as rare as WM. I'm told that a research hospital would be my best bet. Although I'm close to the Kansas University Medical Center, it appears that Mayo in Rochester would be my best bet. The VA oncologist I see says that VA will not pay for treatment at Mayo. Barring that, I wonder if it's possible for Mayo to manage my care through my local VA?

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