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Has anyone else with IDH-mutant diffuse astrocytoma, grade 2?

Brain Tumor | Last Active: Oct 2 10:14am | Replies (42)
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@colleenyoung

Hi@alhayes1976, I'm tagging fellow members @aworriedmom @shell68 @taysuz @aa3 @joesimmons who also have experience with an astrocytoma and IDH1 mutation.

Al, what treatment beyond surgery is being suggested for you?

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Replies to "Hi@alhayes1976, I'm tagging fellow members @aworriedmom @shell68 @taysuz @aa3 @joesimmons who also have experience with an..."
alhayes1976 | @alhayes1976 | Aug 9, 2023

I am going to be put on a prescription called Tibsovo. It has shown results to shrink tumors like mine.

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joesimmons | @joesimmons | Aug 9, 2023

So far for me, with my Grade 2 Astrocytoma, I'm on my 5th week of radiation. Then a month off while the oncologist lets things settle and gets another MRI, then we're supposed to discuss 12 months of chemotherapy.

No one has discussed any other medicine, but my tumor has filled my entire left brain and some of the right before they accidentally found it. None of it can be removed or stopped, only slowed down. Don't know how that affects any other treatment possibilities.

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