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Benign fasciculation syndrome (BFS)

Brain & Nervous System | Last Active: Nov 14 4:35am | Replies (415)

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@marvel61018

A follow up to this since I last posted. I have had one injection of Botox that helped tremendously, eliminating fasciculations almost entirely for the span of 3 months. It's tough to get health insurance to cover it (BCBS prefers "whitebagging," i.e. covering the procedure only if you use their pharmacy, which almost no providers will agree to due to safety concerns.)

That said, it worked, and worked very well. I do not tolerate gaba, pregaba, carbamazepine or any of the other drugs well, so this was a huge relief.

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Replies to "A follow up to this since I last posted. I have had one injection of Botox..."

Where did you have the injections? Can you describe how they felt, when you noticed things changing, and how frequent the twitching was before and after?

Who performed the injections for you?

I've only heard of this being used for eye twitching.