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← Return to Prolia treatment for osteoporosis: What is your experience?
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Prolia treatment for osteoporosis: What is your experience?
Osteoporosis & Bone Health | Last Active: Jul 13 3:27pm | Replies (1246)Comment receiving replies
I have had only one Prolia injection 4/21/23 and it will be my only one. I have had significant pain in hips, legs, neck and jaw. The most recent problem has been infection and swelling in the palate and ulcerations in the mouth which has been going on now for over a month. Also awake with extreme salty taste in my mouth. Have had serious long-term sore throat. I am extremely tired and depressed over this issue. Endocrinologist does not think the mouth issue is from Prolia. Doctors do not know how to treat this. My only hope for relief is when my 6 months is up and hopefully this medication will be out of my system. I'll never take another Prolia injfection. It is poison to my body.
Replies to "I have had only one Prolia injection 4/21/23 and it will be my only one. I..."
Hi, @ouachita , I moved your discussion and combined it with a discussion titled:
-Prolia treatment for osteoprosis: What is your experience?
https://connect.mayoclinic.org/discussion/prolix-treatment-for-osteoporosis
I'm sorry to hear about your bad experience with Prolia. Have any other treatment options been discussed once your 6 months are up on Prolia?
Why is it that when there is an extreme reaction to one of these injections the provider usually says that they don’t think it was caused by the medication. This blows my mind. It makes me very hesitant to try anything.
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My docs don't use Prolia unless there is something else.
Now that you have "failed" Prolia maybe you can do Tymlos (or Forteo). I chose Tymlos because the dose on the pen is adjustable so I could start at a low dose and move up. For those of us who are sensitive to meds, this felt like a safer way to start a med. I have had excellent gains even without many days on full dose.