← Return to Anyone take new drug Camzyos (mavacamten) for HCM?

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@nbs

You are so thoughtful to respond to my message. On the great side, Camzyos is totally working for me. From what I was told by my doctor's office, BMS assigned my specialty pharmacy. In St. Louis, no CVS is qualified to distribute REMS drugs (CVS is my regular pharmacy). My camzyos pharmacy has a $10,000 payment card distributed through BMS which more than covers the cost for one year so payment is not an issue. Aside from this once a month dance I do with the specialty pharmacy, I could not be happier. And I agree with you, how brilliant was it for someone to figure out that OHCM could be prevented by stopping excess miacin from triggering the actin on the heart muscle (basically a miacin inhibitor). All of your information will help others to ask questions ahead of time to avoid delays. I am so glad to hear how well you are doing and for so long!!!

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Replies to "You are so thoughtful to respond to my message. On the great side, Camzyos is totally..."

Hello and thank you for your input. I’m curious about the funding you mentioned because I too received a foundation grant for $10,000 and was told that this grant would cover 2 months since the cost of 5 mg of Camzyos every day is $5000. How is it that your grant covers the cost for a year? I will be looking for grants continuously I guess for as long as I take this drug. Sigh.