Connect
Comment receiving replies
For what it's worth, I can relate... But having more information I feel means we can take back some agency, even though it doesn't make up for all that might have been lost by the time we got to this point.
Do you think you have central sensitization, or hypermobility (HSD/EDS)?
I just came across this blog post on WebMD if you're interested in learning more about central sensitivity (which many people with hypermobility also have): https://blogs.webmd.com/pain-management/20230731/disabling-pain-tests-may-not-tell-you-why
Apparently, the physician who wrote it has a book coming out soon about chronic pain/central sensitivity. But I checked out her website, and she has some blog posts specific to central sensitivity that could be helpful if you're wanting to learn more: https://askdrshana.com/
I didn't look too deeply into it; it might be a little thin on specific recommendations, but I'm happy to share my experience if any of it would help. Or just commiserate.
And @ch47 I'm so sorry I just realized I never replied to your post! Sometimes if I delete the notification, I lose track of it. Were you able to find anything that helped? The above sites are new to me, so might be of interest to you too.
Replies to "For what it's worth, I can relate... But having more information I feel means we can..."
I just printed and took the central sensitization inventory. I scored 72 so I guess I pass with flying colors. Why have I never hear of this?
Definitely hypermobile and have a few autoimmune diagnosis seronegative, Spondyloarthropathy, fibromyalgia, and Hashimoto’s. I have had multiple tears and surgeries in my hip, elbow,knees, etc. that no one could really explain how these problems happened. I had a doctor put in a temporary spinal stimulator to help my lower back pain and he left me with even more damage and neuropathy, etc. I have seen more doctors and specialists than I can count and spent an absolute fortune trying to figure out what is going on with my body. My stomach has been a mess for a long time and the G.I. doctor can’t figure that one out either. Is this sounding at all familiar?
Just read the bit about sensitivity…my pain every where increases with stress…and my normal blood pressure goes up not to so normal…please send anything about this…I know my issues really really amp up when I’m stressed… I know I have real problems, but I’d love to learn how to control things if I could…
Connect
Tried the k taping. Seemed to feel better in the bursitis area, than the hamstring area.
But…pt said I had plateaued…I couldn’t do some of the stuff they wanted me to do because of the bursitis. So I’m out!!! Anyway, I guess we have to get the bursitis in a more comfortable place and can go back. Sent home with a program that I won’t start yet. because of the ablation.
Wonder if the fact she’s leaving in two weeks had anything to do with it???
New pelvic pt in town with great experience and also does bio feedback. Will wait for a bit before seeing her, though.
Stretching feels the most wonderful and then awful after. I am very flexible, still…wonder if I have your issues.
I think trail walking, miles a day, every day, is culprit without the proper muscle strength?
Maybe good thing last pt is leaving…helpful but new ideas coming up. Still using diclofenac patches, doc said I could use two at a time. Very helpful for inflammation.
Also using methocarbamol (muscle relaxers) seems cross purposes, but need for internal pelvic stuff. So many things we have…
Cristinakurz, hope you will find some helpful info from all this…pm me or anyone if you want more personal info-no one has not responded
Together maybe we can all help each other!!!