For what it's worth, I can relate... But having more information I feel means we can take back some agency, even though it doesn't make up for all that might have been lost by the time we got to this point.

Do you think you have central sensitization, or hypermobility (HSD/EDS)?

I just came across this blog post on WebMD if you're interested in learning more about central sensitivity (which many people with hypermobility also have): https://blogs.webmd.com/pain-management/20230731/disabling-pain-tests-may-not-tell-you-why

Apparently, the physician who wrote it has a book coming out soon about chronic pain/central sensitivity. But I checked out her website, and she has some blog posts specific to central sensitivity that could be helpful if you're wanting to learn more: https://askdrshana.com/

I didn't look too deeply into it; it might be a little thin on specific recommendations, but I'm happy to share my experience if any of it would help. Or just commiserate.

And @ch47 I'm so sorry I just realized I never replied to your post! Sometimes if I delete the notification, I lose track of it. Were you able to find anything that helped? The above sites are new to me, so might be of interest to you too.