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Have you been prescribed zonisamide for seizures? My experience.
Epilepsy & Seizures | Last Active: Feb 7 4:54pm | Replies (78)Comment receiving replies
My 47 yr old nonverbal autistic daughter just switched from long term Dilantin use to Zonegran.. in 9 months has had 20# wt. gain, ( usually causes wt. loss!) and some changes in gfr, chloride, creatinine
But done well with behaviors! 300 mg at bedtime..no seizures so should we try reducing dose or dr suggested Lamictal?
Thanks
Replies to "My 47 yr old nonverbal autistic daughter just switched from long term Dilantin use to Zonegran....."
Hello @minajo
I take Zonegram with Depakote and Lamictal. I have not noticed any adverse side effects of it. Depakote lowers the metabolism and can result in weight gain itself. I have taken it for many years and have noticed the side effect. Zonisamide was added two years ago and no weight gain has been noticed. I know there is a minor possibility of the side effect of kidney damage with Zonegram but I have not seen and I hope I will never do so.
Laurie @lsittl
1ellent
I know there are many medications but I tolerate them well, there are no adverse side effects . The addition of Zonegram has made me seizure free for two years when I used to have uncontrollable seizures so I am not going to complain! The neurologists know what they are doing!
@lsittl
Hello guys,
The side effects of Lamictal vary with each patient. It has the usual side effects of dizziness, drowsiness , sleepiness, and nausea like other anticonvulsants. It can also cause headaches. Severe side effects include a rash.
@lsittl
Weight gain is normal with menopause. The lack of appetite may take a minute to kick in. I don't remember . But good luck with the zonisamide.
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Tried dilantin once in 1971 and had to stop because it inflated my lymph glands in my neck, had to stop. Tried it again in 1995 and gained adout 20lbs. Had to stop again in same yr. and lost 20lbs. 1-2-3. All liquid retention from the sodium from dilantin, a very old and not overly effective drug. Sure you can find a better one.