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DiscussionAnyone take new drug Camzyos (mavacamten) for HCM?
Hypertrophic Cardiomyopathy (HCM) | Last Active: Sep 23 7:57am | Replies (770)Comment receiving replies
Replies to "I have been on Camzyos for over a year. In fact, I started this string in..."
You are so thoughtful to respond to my message. On the great side, Camzyos is totally working for me. From what I was told by my doctor's office, BMS assigned my specialty pharmacy. In St. Louis, no CVS is qualified to distribute REMS drugs (CVS is my regular pharmacy). My camzyos pharmacy has a $10,000 payment card distributed through BMS which more than covers the cost for one year so payment is not an issue. Aside from this once a month dance I do with the specialty pharmacy, I could not be happier. And I agree with you, how brilliant was it for someone to figure out that OHCM could be prevented by stopping excess miacin from triggering the actin on the heart muscle (basically a miacin inhibitor). All of your information will help others to ask questions ahead of time to avoid delays. I am so glad to hear how well you are doing and for so long!!!