← Return to Anyone take new drug Camzyos (mavacamten) for HCM?

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@captainterry

I have been on Camzyos for over a year. In fact, I started this string in the beginning when I was trying to get my first prescription. Here are my thoughts on your post.
CVS Specialty Rx has never dropped the ball.
They send email reminders each month and ship express 1 to 3 days to home or local CVS ..... your choice.
You must have fewer than 10 pills on hand in order for them to ship.
Yes you call Rx every month and talk briefly to an intake person and then transferred to their Specialty Pharmacist who asks the same safety questions each time. It's their professional responsibility and for your well being. All seem to be very competent and very friendly.
Refills are 30 days max. Dr may write a script to cover 90 days (3 refills) but only 30 at a time.
BMS nurse navigator has become less of a factor over my experience. Some delays in receiving order could have to do with payment by third parties who are involved in your account (copayment, a grant, valid credit card, etc.). Ask the pharmacy intake person each time if payment is clear as they should be able to give you an answer from their screen.
Hopefully this has been helpful and that Camzyos works well for you. I praise and thank God every day for the incredible brains that invented it, and the entire team (although not perfect) He has placed in my life to help me get it! All is good! Persevere and try to be positive and at Peace.

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Replies to "I have been on Camzyos for over a year. In fact, I started this string in..."

You are so thoughtful to respond to my message. On the great side, Camzyos is totally working for me. From what I was told by my doctor's office, BMS assigned my specialty pharmacy. In St. Louis, no CVS is qualified to distribute REMS drugs (CVS is my regular pharmacy). My camzyos pharmacy has a $10,000 payment card distributed through BMS which more than covers the cost for one year so payment is not an issue. Aside from this once a month dance I do with the specialty pharmacy, I could not be happier. And I agree with you, how brilliant was it for someone to figure out that OHCM could be prevented by stopping excess miacin from triggering the actin on the heart muscle (basically a miacin inhibitor). All of your information will help others to ask questions ahead of time to avoid delays. I am so glad to hear how well you are doing and for so long!!!