It is scary! So don’t beat yourself up for what you feel.
I was misdiagnosed for decades. For decades I was afraid I was going to drop dead if I exercised because my heart rate would go through the roof and I would get out of breath so quickly. Consequently, I became overweight, and out of shape because I needed to exercise. Doctors told me exercise, you won’t drop dead. I was put on a calcium blocker which was supposed to help me. It didn’t. Tests showed my heart wall was thickening. The doctors attributed it to high blood pressure, which I didn’t have.
Last year, I was finally diagnosed with HOCM. I was told about Camzyos and open heart surgery. I was scared! I am still scared! But, I want to live! So, with the encouragement and feedback of this group, and my specialist cardologist recommendation, I decided to try Camzyos. I have been on it for 9 weeks. It is not working as well for me as some of the other people in this group who are having excellent results. It’s been frustrating. But, I am doing what I have to do to live a better quality of life. I believe you can do it too! We are here to support you.