← Return to Cerebellar Stroke - experience/treatment/recovery

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@v8s

Thanks for the tip on the Australian site. Your husband is lucky to have you!

“post-stroke head pains, dizziness, fatigue, tinnitus, hyperacusis/sound sensitivity” have you found any help for these? I sure hope so and would appreciate any suggestions to learn more.

I hope your husband is feeling better.

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Replies to "Thanks for the tip on the Australian site. Your husband is lucky to have you! “post-stroke..."

I apologize for taking a month to reply to your request for suggestions, if any. I found out that tinnitus can increase with stress. So that's nice to know "why" when you have an increase, and it encourages stress management. I found out recently from a participant in the dizzy online support group that head and neck pains can be from anxiety! Of course fatigue increases with lack of activity (which goes with the dizziness). And it's a possible side effect of ... anxiety. All that brings us back to stress management. So even if these symptoms are mostly stroke caused, there could also be an anxiousness component added in. Plus addressing stressors is still going to improve life for anyone. This link to a psychologist tells how to counter our resistance to self-care. https://www.simplepractice.com/blog/overcoming-personal-barriers-to-self-care/. She also helps make the basic "eat right, exercise, and get enough sleep" that we all know but struggle with more doable. How to Create an Affordable, Sustainable Self-Care Plan Eliz.Scarlett, MA, 5/30/23
https://www.simplepractice.com/blog/creating-a-sustainable-self-care-plan/. Nothing I read on hyperacusis so far was applicable for my husband, but it might be for you. The fact that I got hearing aids, and now experience some types of sounds as too loud, makes me more empathetic. I adapt for him. I load the dishwasher when he's not in the kitchen; I call out a warning when I need to make noise (run the garbage disposal). I put ear plugs at his chair. Etc.
Thank you for your good wishes, v8s. My husband is sorry for his losses, and he keeps his spirits up by counting his countless blessings and maintaining his perspective (things could be worse). Thank you to those who write here about seeing improvements years after the stroke. When he said recently that maybe he won't get any better (after two years), I was able to tell him that I've read of those who do.