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Hypertrophic Cardiomyopathy (HCM) | Last Active: Jul 24 1:40am | Replies (39)
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Replies to "I was diagnosed with HOCM about 5+ years ago in my mid 50s after about 5..."
@heatherdexter59, your story is like so many HOCM'ers. Misdiagnosed for many years before finally getting it right. HCM/HOCM mimics many other conditions that we often get labeled with something close, but not quite right. In my case I was misdiagnosed three times by the same cardiologist over five years, who told me to drink more water and put me on a beta blocker. I'm glad you know what you really have and I am glad you are here and following the Camzyos and the Hypertrophic Cardiomyopathy groups. You can learn so much from the Camzyos group as they share their ups and downs, frustrations and celebrations, yays and nays. They are brave for trying something so new and each one has a different experience. How often do you see your cardiologist? It is so uncommon, is your doctor experienced with HCM?