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Trouble eating with HCM

Hypertrophic Cardiomyopathy (HCM) | Last Active: Nov 10, 2023 | Replies (38)

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@heatherdexter59

I am not on Camzyos yet. On the fence as it winds it’s way through Canadian regulatory system and hopefully gets cheaper next year under our provincial pharmacare program. Except for occasional disopyramide shortages during COVID, my meds are working ok. I am on 125 mg of metoprolol. At present I am leaning towards watching and waiting to see how everyone does on Camzyos as it rolls out before trying it. My current meds work well enough that I don’t want to face the monthly echos and dosage tweaks and all that tht brings. If I get worse I may try it but for now am sticking with the old fashioned stuff.

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Replies to "I am not on Camzyos yet. On the fence as it winds it’s way through Canadian..."

I have been on Camzyos for three weeks now and kind of wish I had just stayed on the same medical intervention you are currently on. (Disopyramide and Metoprolol) It is such a hassle to have all the ECHOs , submit all the paperwork, and not feel any different! If I improve drastically, I will let you know.