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Anyone take new drug Camzyos (mavacamten) for HCM?

Hypertrophic Cardiomyopathy (HCM) | Last Active: 7 hours ago | Replies (736)
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@whidbey

I have an amazing Cardiologist at the University of Washington and he is one who encouraged me to take Camzyos. He has seen amazing results with patients in his practice. I just don't have a nurse navigator or patient advocate. This blog has a wealth of information for me.

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Replies to "I have an amazing Cardiologist at the University of Washington and he is one who encouraged..."
kelliw | @kelliw | Aug 7, 2023

Good morning! I am so puzzled that BMS hasn't put a nurse navigator with you. I thought it was the protocol. When I signed up the NN called the next day and continues to call once a month to make sure everything is going well. I would think BMS would insist on this to make sure there aren't any problems. It is so strange that all of us on this site have such different experiences. It is really helpful that we all talk to try to figure this stuff out. I am so happy that you have a great cardiologist! That is encouraging! 🙂

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