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New to pancreatic insufficiency. What does this journey look like?

Digestive Health | Last Active: Aug 9 4:00pm | Replies (15)
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@grannydee

Hi Cheryl,
I’m in the US! I had no idea you were in AU!!!
Welcome to the board, and I wish that I knew of sources of help that are close to you!
I will contact the NPS here and ask them if they have any recommendations for someone living in AU.
Surely we can find something!!!
Welcome, welcome, welcome! I’m so glad you reached out.
They’re always something new to learn here and I totally understand frustration in dealing with the lack of knowledge with EPI and the many complications that may accompany the diagnosis.
I’ll get back with you ASAP after I call the NPF tomorrow!!!
Huge hugs from me, Gramny Dee

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Replies to "Hi Cheryl, I’m in the US! I had no idea you were in AU!!! Welcome to..."
shezza51 | @shezza51 | Aug 6, 2023

awww thank you
Gramny ? Granny ? I'm 72 & im also a granny. Where in usa are you ? big city ? farm area ?
Have been on Crrohn since 2015 because of 4 pancreatic cysts.
last Oct had a Distal Pancreotomy and Splenectomy then 3 overnighters in hospital in jan mar & april due to infection then "fluid collection" then blood clots. Now tupe 2 disbetic and fouble the crrohn but only under a GP and useless Dietician 😤😤😤
No specialists in regional cities & its 200km to hospital where I had operation.
Diabetes info online is verrry confusing as its opposite of diet recommendations post surgery & I still have cysts
Any advice appreciated --feeling ok I just dont want to cause myself future problems
Hugs & many thanks
Cheryl

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