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Has anyone had experience with Jakafi?

Blood Cancers & Disorders | Last Active: Jun 22 10:22pm | Replies (54)

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@colleenyoung

Welcome @papa6275, I'm tagging fellow members @draney @chattiek @pamdg @lwengel @raremiracle2 to share their experiences with Jakafi (ruxolitinib) for polycythemia vera (PV). Many members have talked about this treatment in the context of other discussions. To find them, you may wish to use Jakafi as a keyword in the Search.

Here are few related discussions that might interest you:
- What's the latest Jakafi (ruxolitinib) for polycythemia vera (PV) https://connect.mayoclinic.org/discussion/polycemia-vera/
- Polycythemia Vera: Just been diagnosed https://connect.mayoclinic.org/discussion/polycythemia-vera-1/

I'm glad to hear that Jakafi is more tolerable for you than your experience with Hydrea. How are you feeling today?

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Replies to "Welcome @papa6275, I'm tagging fellow members @draney @chattiek @pamdg @lwengel @raremiracle2 to share their experiences with..."

I’m doing ok however I am having burning and tingling on the bottom of my feet. Especially in bed at night.