← Return to Aplastic Anemia Info HELP

Discussion

Aplastic Anemia Info HELP

Blood Cancers & Disorders | Last Active: Aug 14, 2023 | Replies (4)

Comment receiving replies
@pga62

My son was diagnosed with severe Aplastic anemia his freshman year in college. He was healthy, was on the college cross country and track and field team. I feel your emotion as we thought he had mono and never expected to be hearing " we have ruled out the "C" word. The good fortune was this doctor had a " friend" - Dr. John Lister, who specialized in treating the condition that was soon to be named as idiopathic Aplastic anemia. It was a frightening ride, but let me tell you...our doctor never ever waivered. We can help your son. Fortunately his brother was a 10/10 match for being a donor. It went exactly the way the doctor told us it would. My son is 6 years post transplant. He missed one semester of school and is an electrical engineer. There is tremendous science on this subject. Yes, it is very serious and yes, things can go wrong, but it is highly specialized at every hour, day, month, year post transplant. There will be specialized doctors each stage post transplant. There is also a lot of research on matching donors and how to have engraftment occur. I will say a prayer for your and your family. Be there, be present...even if it is just quiet in a chair was your child is a patient. I treasure ever second I had with my son through his journey. He is now adulting 2000 miles away...he just returned from " borrowing" equipment for the research he is working on from the Hutchinson Cancer Center in Seattle...a world leader in stem cell transplantation. Our doctor trained under Dr. Thomas. The world is a small connected place and you must always have faith.

Jump to this post


Replies to "My son was diagnosed with severe Aplastic anemia his freshman year in college. He was healthy,..."

@pga62, what an inspiring story to give others hope. I can imagine your fright when you heard your son was diagnosed with aplastic anemia and needed a bone marrow transplant. And then to learn that his brother could be the donor.

And look at him now - an electrical engineers and working on research with the Hutchinson Cancer Center.

@rebdiebold, how are you and your son doing?