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MRSA Please Help.

Infectious Diseases | Last Active: Aug 5, 2023 | Replies (5)

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@sb4ca

I believe we’ve talked before. If you didn’t have IV antibiotics for minimum 6 weeks I can imagine the initial infection was never completely gone. Why did they switch you to oral? I’ve not heard good things about Linezolid and if I’m recalling it right, the older antibiotic used. Have you ever been on Vancomycin? That was the second antibiotic they had me on but the trough got so high it caused an acute kidney injury But that was the antibiotic I was on the longest. I know you’re very keen on the Phage therapy but my concern for you is this delay in getting it while your leg infection is ongoing. Please be careful and do you have a back up plan? I worry about you

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Replies to "I believe we’ve talked before. If you didn’t have IV antibiotics for minimum 6 weeks I..."

Yes, I was on Vancomycin via a PICC line IV for a few months before they switched me to the Linezolid oral. NOBODY at any point along this nightmare of a journey for me has been completely clear about why they did anything. Nothing was thoroughly explained and still hasn't been. If you think you're worried about the delay, how do you imagine I feel? This has been going on since April of last year now! I just keep getting excuses and rejections and NO help at all. I haven't had any tangible support from anyone, it's been a one man battle. Supposedly, Mayo has all my records and information, but I guess they are still waiting on referrals from my doctors. It just really stinks knowing that there is a treatment available that can save my leg, but nobody is willing to treat me. It's almost like they are purposely delaying it and hoping I lose my leg or die. I certainly hope that isn't true, but it sure feels that way after all I have endured so far. And what really irks me the most is, that none of this is my fault. The only thing I can be faulted for is placing my trust in the medical professionals that advised and treated me. I have even contacted lawyers over all this, but even they won't talk to me about it. Seems pretty strange to me that I can't find any doctors willing to help or any lawyers either. Could it be that because I am reliant on Medicare and Medicaid, they just don't care, or because I am obese? I don't know, but there must be some reason why I haven't been able to find any help. The only backup plan I have is to just let them take my leg and essentially end my life. With my size and weight, I couldn't get a prosthetic leg and I wouldn't be able to take care of my own basic needs and would end up in a nursing home at 52 years old! I had gastric bypass surgery and lost almost 300 pounds, but does anyone care? NO! They only know that I still weigh 500 pounds and they think it's because I eat too much and I'm lazy! ALL I have done is make efforts to improve my health, but all I have been met with is negativity and resistance. How on Earth I have been able to keep a positive attitude this long is an absolute mystery, but my strength and positivity are beginning to wane.