← Return to Anyone take new drug Camzyos (mavacamten) for HCM?

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@whidbey

Thank you for your response. I do not have a nurse navigator. I have appreciated reading this Mayo clinic blog.

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Replies to "Thank you for your response. I do not have a nurse navigator. I have appreciated reading..."

@whidbey, that must be a lonely feeling not having the support of a nurse navigator or specialty pharmacist to talk to when you just began a brand new drug. Being so new on the drug seems like you should have close follow up and easy communication, especially regarding drug interactions. Are you able to contact your doctor about this? It seems like a serious issue, and warrants closer medical supervision. You only recently began the Camzyos treatment...I just can't imagine you would have no way to communicate side effects to your physician. Is your cardiologist familiar with HOCM and Camzyos? @kelliw has an awesome champion cardiologist who has been so supportive of her and went to bat for her when she was told to adjust her medication. I mention this because you have to be your own advocate sometimes. Not everyone has a super star for a cardiologist, and they have to fight for themselves. @jaymaysea began Camzyos recently and had issues with adjusting meds too. Please be sure you are being heard. It is important because this is a new drug, and you need to be followed closely. I would encourage you to contact your doctor. May I ask where you live?