← Return to I am newly Diagnosed with MGUS.

Discussion

I am newly Diagnosed with MGUS.

Blood Cancers & Disorders | Last Active: Feb 6 5:38am | Replies (61)

Comment receiving replies
@barbdk

I am a long time myeloma patient. 15 years, 2 stem cell transplants, have been in complete remission since 2014. A few years ago I developed mgus of a different type from my original myeloma. My hematologist, a well known expert from Mayo Clinic, told me not to worry about it, lots of people have mgus and it never develops into treatable disease. I thought I’d be higher risk since I already have had treatable disease, but nope, she still thinks it’s just a situation to watch, along with my “regular” myeloma.

Jump to this post


Replies to "I am a long time myeloma patient. 15 years, 2 stem cell transplants, have been in..."

That’s what my hematologist told me about my MGUS.
She wants to recheck my labs every 6 mos.
Right now my labs are ok, no need to do anything else.