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Sjogren’s Syndrome – Introduce yourself and meet others

Autoimmune Diseases | Last Active: Dec 3, 2023 | Replies (621)
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@suetex

I too had a lot of unexpected "negatives" in my work up (Sed rate,CRP, ANA, HLAB27) but my new Rheumatologist found antibodies against my salivary glands and that plus my symptoms equalled Sjogren's to her. Good thing too, it also explains the weight bearing balance problem in my legs that I have had for over 2 years. Growing weakness, too. Short Fiber Neuropathy she called it and Sjogren's can do its own version of it. Also low IgG which may be part of the treatment. I will let you know. Don't stop your search. Nag, if necessary.

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Replies to "I too had a lot of unexpected "negatives" in my work up (Sed rate,CRP, ANA, HLAB27)..."
eileenb1022 | @eileenb1022 | Aug 5, 2023

same with me my sed rate and c reactive protein was normal as was everything and i was tested for a bunch of things. my legs and feet hurt so much. i wear compression socks during the day which helps. but nighttime aches. hands and fingers all over really. normal cervical mri. I think my IgG was normal too. but neuropathy in my eyes. uuuggg. i do see a rheum by telehealth in oct. he was highly thought of so im hoping reason telehealth he is in nyc and i am in NH. im waiting to hear back from my ent about a lip biopsy which id rather not do but feel like i am running out of options.

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