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Interstitial pulmonary fibrosis
Lung Health | Last Active: Nov 12, 2023 | Replies (48)Comment receiving replies
I was diagnosed with ILD a few years ago. Really didn't think it was too bad but early this year, March, I had pneumonia and that really hit me hard. I'm still trying to get back my stamina. I've been through pulmonary rehab and now I'm going to drive to a wellness center to use their exercise equipment. I see a pulmonologist at Mayo in Rochester MN and she has suggested Ofev. I don't like the idea of the stomach issues and the cost. How much does the CellCept cost and are there any side effects? I am trying to walk more too. Now I am able to walk for 10 minutes at a decent pace but have a ways to go yet.
Replies to "I was diagnosed with ILD a few years ago. Really didn't think it was too bad..."
Keep up the walking and maybe even purchase a Microlife Digital Peak Flow and FEV Meter online at Amazon. Easy to use and a good indicator of your progress. Also available online is the small device doctors put on your finger to measure your oxygen level. I don't know how much CellCept costs but my copay is $ 10.00/month. Ask your doctor about it. Good luck to you and keep on increasing your walking time.
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Ktgirl,
So sorry to hear about your drop…Ofev is expensive, but depending on your income, etc, you may get it for free from company or find help with copayments.
Tummy things may not present, and could possibly be prevented or managed. If you start to have something, doctor will adjust, or possibly stop Med for a little while.
If you want more info, please pm me…
Sounds like you are working hard to get back on track!